Profound Intellectual and Multiple Disabilities: Nursing Complex Needs

Children and adults with profound and multiple learning disabilities (PMLD) are among the most marginalised people in society. They have some of the highest support needs and are most reliant on services. This accessible text presents and promotes current best practice regarding interventions to meet the complex health needs of a person with profound & multiple learning disabilities. Practical in focus, this text provides evidence-based guidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that a practitioner may face, such as communication, nutrition, epilepsy, vision and mobility. Each practice-focused chapter provides clear definitions of the condition, with current evidence-based best-practice supporting the intervention. Written by a team of professionals who have wide experience and interest in this subject area, this text will be invaluable for all those working with, and caring for those with profound and multiple learning disabilities.

Table of Contents:
Contributors vii Foreword ix Acknowledgements xiii Section 1 Assessing Complex Needs Chapter 1 Introduction 03 Jillian Pawlyn and Steven Carnaby Chapter 2 Quality of Life: People with Profound Intellectual and Multiple Disabilities 15 Katja Petry and Bea Maes Chapter 3 Supporting a Person with Profound Intellectual and Multiple Disabilities to Maintain Their Health: A Parent Carer and Support Team Experience 37 Jan Roast, Katie Hickson and Sarah King Chapter 4 Making Sense of Communication 46 Karen Bunning Chapter 5 Promoting the Emotional Well-being of People with Profound and Multiple Intellectual Disabilities: A Holistic Approach through Intensive Interaction 62 Melanie Nind Chapter 6 Achieving and Maintaining Health 78 Jillian Pawlyn Chapter 7 Clinical Assessment of People with Profound Intellectual and Multiple Disabilities 98 Steven Carnaby Section 2 Meeting Complex Needs Chapter 8 Mental Health Problems and People with Profound Intellectual and Multiple Disabilities 113 Steven Carnaby Chapter 9 Epilepsy: Implications for People with Profound Intellectual and Multiple Disabilities 134 Mary Codling and Nicky MacDonald Chapter 10 ‘Sight Is Might’: Vision and Vision Impairment in People with Profound Intellectual and Multiple Disabilities 147 Gill Levy Chapter 11 Hearing and Aural Health 168 Laura Waite Chapter 12 Respiratory Health of People with Profound Intellectual and Multiple Disabilities 186 Colin Wallis Chapter 13 Dental Care and Oral Health 202 Pauline Watt-Smith Chapter 14 Dysphagia and People with Profound Intellectual and Multiple Disabilities 236 Hannah Crawford Chapter 15 Nutrition, Hydration and Weight 259 Siân Burton, Susan Cox and Sue M. Sandham Chapter 16 Continence 292 Jillian Pawlyn and Shirley Budd Chapter 17 Mobility, Posture and Comfort 328 Sarah Hill and Liz Goldsmith Chapter 18 Profound Intellectual and Multiple Disabilities: Meeting Complex Needs through Complex Means 348 Steven Carnaby and Jillian Pawlyn Index 355

About the Author :
ABOUT THE EDITORS: JILLIAN PAWLYN is Lecturer/Practitioner at Ridgeway Partnership NHS Trust and Oxford Brookes University, Oxford. STEVEN CARNABY is Consultant Lead Clinical Psychologist at Westminster Learning Disability Partnership, London.

Review :
"The book is essential reading for learning disability nurses at any level.... A book that is crammed with both practical information and stimulating theory." (Learning Disability Practice, April 2009) "An accessible text examining best practice for assessing and meeting the needs of people with profound and multiple learning disabilities." (Viewpoint, November 2008)