PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES
Nursing Complex Needs
Children and adults with profound and multiple learning disabilities (PMLD) are among the most marginalised people in society. They have some of the highest support needs and are most reliant on services. This accessible and practical text presents and promotes current best practice regarding interventions to meet the complex health needs of a person with profound and multiple learning disabilities.
Divided into two sections, Profound Intellectual and Multiple Disabilities first looks at assessing complex needs, exploring topics such as communication, maintaining health, and quality of life. Part two then discusses meeting complex needs, looking at topics such as mental health problems, epilepsy, vision impairment, aural health, respiratory health, nutrition, and dysphagia.
KEY FEATURES:
- Examines current theory and practice in supporting people with profound and multiple learning disabilities and/or complex needs
- Identifies the key knowledge and skills required by learning disability nurses and other health care professionals
- Provides evidence-based best-practice guidelines about caring for people with PMLD
- Offers insights into parent carer and professional carer experiences
Table of Contents:
Contributors vii
Foreword ix
Acknowledgements xiii
Section 1 Assessing Complex Needs
Chapter 1 Introduction 03
Jillian Pawlyn and Steven Carnaby
Chapter 2 Quality of Life: People with Profound Intellectual and Multiple Disabilities 15
Katja Petry and Bea Maes
Chapter 3 Supporting a Person with Profound Intellectual and Multiple Disabilities to Maintain Their Health: A Parent Carer and Support Team Experience 37
Jan Roast, Katie Hickson and Sarah King
Chapter 4 Making Sense of Communication 46
Karen Bunning
Chapter 5 Promoting the Emotional Well-being of People with Profound and Multiple Intellectual Disabilities: A Holistic Approach through Intensive Interaction 62
Melanie Nind
Chapter 6 Achieving and Maintaining Health 78
Jillian Pawlyn
Chapter 7 Clinical Assessment of People with Profound Intellectual and Multiple Disabilities 98
Steven Carnaby
Section 2 Meeting Complex Needs
Chapter 8 Mental Health Problems and People with Profound Intellectual and Multiple Disabilities 113
Steven Carnaby
Chapter 9 Epilepsy: Implications for People with Profound Intellectual and Multiple Disabilities 134
Mary Codling and Nicky MacDonald
Chapter 10 ‘Sight Is Might’: Vision and Vision Impairment in People with Profound Intellectual and Multiple Disabilities 147
Gill Levy
Chapter 11 Hearing and Aural Health 168
Laura Waite
Chapter 12 Respiratory Health of People with Profound Intellectual and Multiple Disabilities 186
Colin Wallis
Chapter 13 Dental Care and Oral Health 202
Pauline Watt-Smith
Chapter 14 Dysphagia and People with Profound Intellectual and Multiple Disabilities 236
Hannah Crawford
Chapter 15 Nutrition, Hydration and Weight 259
Siân Burton, Susan Cox and Sue M. Sandham
Chapter 16 Continence 292
Jillian Pawlyn and Shirley Budd
Chapter 17 Mobility, Posture and Comfort 328
Sarah Hill and Liz Goldsmith
Chapter 18 Profound Intellectual and Multiple Disabilities: Meeting Complex Needs through Complex Means 348
Steven Carnaby and Jillian Pawlyn
Index 355
About the Author :
ABOUT THE EDITORS:
JILLIAN PAWLYN is Lecturer/Practitioner at Ridgeway Partnership NHS Trust and Oxford Brookes University, Oxford.
STEVEN CARNABY is Consultant Lead Clinical Psychologist at Westminster Learning Disability Partnership, London.
Review :
"The book is essential reading for learning disability nurses at any level.... A book that is crammed with both practical information and stimulating theory." (Learning Disability Practice, April 2009) "An accessible text examining best practice for assessing and meeting the needs of people with profound and multiple learning disabilities." (Viewpoint, November 2008)
