About the Book
Healthcare systems around the world are placing increasing importance on the relationship between patient choice and clinical decision-making, with many countries having shared decision making as a central theme in their healthcare policy developments. The concept of shared decision making (SDM) in healthcare is simple: clinicians and patients work together when solving problems and making decisions. However, the context and implementation are more
challenging.Written by a global team of experts, the Oxford Textbook of Shared Decision Making, fourth edition, examines from both theoretical and practical perspectives, what comprises an
effective decision making process, looking at the benefits and potential difficulties that arise when patients and clinicians share healthcare decisions. The first sections cover the theory, methods, and implementation of SDM. Later sections examine SDM from the viewpoints of different clinical and surgical specialities, and allied disciplines such as nursing, pharmacy, and midwifery. Each chapter contains reflections from a patient partner with lived experience of SDM, giving a truly diverse
and collaborative account of how SDM can work between patients, families, carers, and healthcare professionals.Authoritative, evidence based, and grounded in clinical practice, the
Oxford Textbook of Shared Decision Making explores a very important paradigm shift in the delivery of healthcare, providing thoughtful consideration and key strategies for its successful implementation.
Table of Contents:
Part 1: Introduction
1: Glyn Elwyn, Natalie Joseph-Williams, Karina Prévost, Adrian Edwards, and Christopher R. Jacobs: Enabling shared decision making in practice
Part 2: The theory of shared decision making
2: Glyn Elwyn, Amy Price, Juan V.A. Franco, and Pål Gulbrandsen: The limits of shared decision making
3: Paul B. Batalden, E. Chandlee Bryan, Anna Edwards, and Eugene C. Nelson: Coproduction and learning health systems
4: Anne M. Stiggelbout, Willem-Jan Bos, Lowri Smith, and Sally Lewis: Value-based health care and shared decision making
5: Tim Lahey, Angie Burke, and Glyn Elwyn: Patient capacity and shared decision making
6: Paulina Bravo, Eman Abukmail, Yuko Goto, Irma Vargas, Lyndal Trevena, and Martin Härter: Cultural adaptation of shared decision making and patient-centred care models
7: Paul K.J. Han, Laura Zwaan, Désirée Hairwassers, and Glyn Elwyn: Is shared decision making appropriate for diagnostic decisions?
8: Zackary Berger and Angela Williams: The individual and social ethics of shared decision making: Critiques and responses
Part 3: Methods in SDM research
9: Isabelle Scholl, Denitza Williams, Otmar Kodalle, and Marleen Kunneman: Measurement of shared decision making
10: K.D. Valentine, Rachel C. Forcino, E. Chandlee Bryan, and Karen Sepucha: Patient-reported measurement in shared decision making
11: Anik Giguere, Marleen Kunneman, and Karina Prévost: Observational measurement of shared decision making
12: Marleen Kunneman, Matthijs Graner, and Isabelle Scholl: Innovation in shared decision making assessment
Part 4: Approaches to teaching and training
13: Tammy C. Hoffmann, Mina Bakhit, and Anna Waters: Shared decision making teaching frameworks
14: Melanie Fritz, Amy Zelenski, Margaret Schwarze, and Kathy Kastner: Best case/worst case: A framework to improve medical communication and decision making in high risk and uncertainty situations
15: Pål Gulbrandsen, Arwen H. Pieterse, and Arne Lein: Innovations in shared decision making teaching
Part 5: Implementation
16: Natalie Joseph-Williams, Adrian Edwards, Julie Kenealy, and Glyn Elwyn: Where are we now? An overview of international progress in shared decision making implementation
17: Rachel C. Forcino, Danielle Schubbe, and Myrtle Mitchell: Overview of shared decision making implementation
18: Robert J. Volk, Krystina B. Lewis, Maureen Smith, and Dawn Stacey: The International Patient Decision Aid Standards (IPDAS) collaboration: Evolution and current status
19: Dawn Stacey, Krystina B. Lewis, Maureen Smith, and Robert J. Volk: Patient decision aids: Characteristics and evidence of effectiveness
20: Anja Fog Heen, Roger Bertozzi, and Thomas Agoritsas: Patient decision aids: Access and sustainability of up-to-date tools
21: Pola Hahlweg, Anja Lindig, Cordula Mühr, Kai-Uwe Parsons-Galka, Fülöp Scheibler: Large-scale implementation of shared decision making in Germany: Three case studies
22: Dan D. Matlock, Chris Knoepke, Mayuko Ito Fukunaga, and Susan Strong: Implementation of shared decision making in the USA: Case studies
23: Karina Olling, Marlene Würgler, Karina Dahl Steffensen, and Jan Faldt Bentsen: Implementation of shared decision making in Denmark: A case study
24: Arwen H. Pieterse, Haske van Veenendaal, Dominique Sprengers, and Trudy van der Weijden: Implementation of shared decision making in the Netherlands: A case study
25: Alf Collins, Helen Bulbeck, and Paul Grundy: How to improve shared decision making in your practice: Using improvement methods to drive change
Part 6: The view from the clinical specialities
26: Leigh Sanyaolu, France Legare, Adrian Edwards, and Susannah Fraser: Shared decision making from the perspective of primary care
27: Yumi Aoki, Lilisbeth Perestelo Pérez, Yaara Zisman-Ilani, and Hidetoshi Matsuura: Shared decision making in mental health care
28: Douglas J. Opel, Naomi Laventhal, Nancy Kuemin, and Seema Shah: Shared decision making in paediatrics and child health care
29: Johanna (Annemijn) W.M. Aarts, Laura Spinnewijn, Tina C. Foster, and Jolanda Wellen: Shared decision making in obstetrics and gynaecology
30: Karina Dahl Steffensen, Dawn Stacey, Liesbeth Boersma, and Mona Muusmann Petersen: Shared decision making in cancer care
31: Naykky Singh Ospina, Victor M. Montori, Rene Rodriguez-Gutierrez, and Ruth McCullars: Shared decision making in endocrinology
32: Alessandro Brunelli and Janette Rawlinson: Shared decision making in thoracic surgery
33: Srinivas Joga Ivatury, Helene Juul Würtz, Alexander T. Hawkins, and Craig Creelman: Shared decision making in colon and rectal surgery
34: Bianca Buurman, Ruth Pel, Gérard Hendriks, and Wim Roelofs: Shared decision making in care for older adults with multiple chronic conditions
35: Joshua B. Rager, Tod Papageorge, and Erica S. Spatz: Shared decision making in cardiovascular care
36: Tessalyn Morrison, Erin Foster, and Rita Pipes: Shared decision making in dermatology
37: Elisabeth Smith, Daniel C. Norvell, Dirk T. Ubbink, Michael Mcloughlin, and David C. Bosanquet: Shared decision making in vascular surgery
38: Adele Ketley, Sam Brunsden, Lynda Wyld, and Jenna Morgan: Shared decision making in breast cancer surgery
39: Giulia M. Ippolito, Roshan Paudel, Marty Chakoian, Jerry Thomas, and Danil V. Makarov: Shared decision making in urology
40: Elizabeth A. Kroll, Adina Harri, Robert Schlegel, and Vincent D. Pellegrini: Shared decision making in orthopaedic surgery
41: Rachel C. Forcino, Robert M. Kaplan, Helen Leonard, and Christian von Plessen: Shared decision making in public health: Balancing individual choice with the common good
42: Jolyn Hersch, Rikke Nicoline Stokholm, Janice Tufte, and Carissa Bonner: Shared decision making for screening
43: Rashmi G. Mathew, Hannah M. Timlin, Olawale A. Akinrogunde, and Carrie J. MacEwen: Shared decision making in ophthalmology
44: Elaine C. Thompson, Hannah Leavitt, Paul Hong, and Emily F. Boss: Shared decision making in otolaryngology
45: Saam Dilmaghani, Johannah Ruddy, Ian Hargraves, and Jean Fox: Shared decision making in gastroenterology and hepatology
46: Constanze Stolz-Klingenberg, Michaela Prigge, Walter Maetzler, and Christoph Heesen: Shared decision making in neurology
47: Fernanda Bellolio, Kasey Boehmer, and Erik Hess: Shared decision making in emergency medicine
48: Hilary L. Bekker, Jeanette Finderup, Andrew Mooney, Henning Søndergaard, and Anna E. Winterbottom: Shared decision making interventions for kidney failure treatment and management
49: Paulus A.F. Geerts, Thomas W. LeBlanc, and Wiebe Cnossen: Shared decision making in haematology
50: Rakhshan Kamran, Kenny Ardouin, Liam J. Peck, and Jeremy N. Rodrigues: Shared decision making in plastic surgery
51: Meredith MacMartin, Pola Hahlweg, Joan Collison, and Simon Noble: Shared decision making in palliative and supportive care
52: Mark D. Neuman, Mary C. Politi, May Hua, and Hugo Campos: Shared decision making in intensive care and anaesthetics
53: Yaara Zisman-Ilani, Wiebke Frerichs, Scout Silverstein, and Martin Härter: Shared decision making in psychosomatic conditions
54: Namrata Singh, Eileen Davidson, Cheryl Crow, and Jennifer L. Barton: Shared decision making in rheumatology
Part 7: The view from allied disciplines
55: Deirdre Daly, Valerie Smith, Marianne Nieuwenhuijze, and Ellen McEvoy: Shared decision making in midwifery
56: Rob Letchford, Elaine Taylor, Martin Dando, and Zoe Silsbury: Shared decision making in physiotherapy
57: Kirsten Lomborg, Jeanette Finderup, Sally Thorne, and Henning Søndergaard: Shared decision making in nursing and advanced practice nursing
58: Jonathan Underhill, Steven D. Williams, Carole Pitkeathley, and Neal Maskrey: Shared decision making in pharmacy
59: Anwen Cope, Ivor G. Chestnutt, and Jennifer Wilson: Shared decision making in dentistry
60: Darren Flynn, Katherine Baker, Gemma Bradley, Craig Craggs and Jason Scott: Shared decision making for people living with multimorbidity: Perspectives from psychology, physiotherapy, occupational therapy and lived experience
Part 8: The way forward
61: Samira Abbasgholizadeh Rahimi, Dan Poenaru, Glyn Elwyn, and Karina Prevost: Technological innovations: Use of artificial intelligence in shared decision making
62: Sara Riggare, Amy Price, Dawn P. Richards, Valerie C. Cates, and Glen Hazlewood: Shared decision making: A patient perspective
63: Mary C. Politi, Carrie C. Coughlin, Lindsay Kuroki, and Jessica Miller: The importance of cost conversations as part of shared decision making
64: Marie-Anne Durand, Julie Ayre, Catherine H. Saunders, Christine M. Marx, and Kirsten McCaffery: Increasing equity in shared decision making
65: Thaddeus Mason Pope, Valerie Gutmann Koch, and Nadine Montgomery Allam: The law and shared decision making: Recent developments
66: Natalie Joseph-Williams, Glyn Elwyn, Libby Humphris, and Adrian Edwards: Where do we go from here? International priorities for shared decision making practice and research
About the Author :
Glyn Elwyn is a clinician and researcher. He is a tenured professor at The Dartmouth Institute for Health Policy and Clinical Practice in the USA, and has visiting chairs at Radboud University Nijmegen, University College London, UK, and the University of Lausanne in Switzerland. He studies coproduction and shared decision making in the context of learning health care systems, and the application of machine learning to digital recordings of clinical encounters. His
website can be found at: www.glynelwyn.com . Natalie Joseph-Williams is a Reader in Improving Patient Care at Cardiff University, UK. She is also a Board member and
Scientific Lead for the International Shared Decision Making Society. Her specific research interests include implementation of person centred approaches in routine healthcare systems, patient and public involvement and engagement in health research, and shared decision making training for health and care professionals. Adrian Edwards is Professor of General Practice at Cardiff University, UK. He is also a part-time general practitioner in Cwmbran, Gwent, South Wales, and has a visiting
professorship at Aarhus University, Denmark. His research interests have been in shared decision making and the development of decision aids, health literacy and self-management support.
