About the Book
Over the past decade health care systems around the world have placed increasing importance on the relationship between patient choice and clinical decision-making. In the years since the publication of the second edition of Shared Decision Making in Health Care, there have been significant new developments in the field, most notably in the US where 'Obamacare' puts shared decision making (SDM) at the centre of the 2009 Affordable Care
Act.This new edition explores shared decision making by examining, from practical and theoretical perspectives, what should comprise an effective decision-making process. It also looks at the benefits and
potential difficulties that arise when patients and clinicians share health care decisions. Written by leading experts from around the world and utilizing high quality evidence, the book provides an up-to-date reference with real-word context to the topics discussed, and in-depth coverage of the practicalities of implementing and teaching SDM.The breadth of information in Shared Decision Making in Health Care makes it an essential resource for policy-makers and
health care workers. As health care systems adapt to increasingly collaborative patient-clinician care frameworks, this will also prove a useful guide to SDM for clinicians of all disciplines.
Table of Contents:
Section 1: Real-world context
1: Glyn Elwyn and Adrian Edwards: Shared decision making: a path to customised rather than commercialised healthcare
2: Vikki A. Entwistle and Ian S. Watt: Broad versus narrow shared decision making: patients involvement in real world contexts
3: Dominick L. Frosch and Kristin L. Carman: Embracing patient and family engagement to advance shared decision making
4: Dominick L. Frosch, Caroline Tietbohl, and Isabelle Scholl: Overcoming implementation challenges to advance shared decision making in routine practice
5: William A. Nelson, John J. Donnellan, and Glyn Elwyn: Implementing shared decision making: an organisational imperative
6: Albert G. Mulley, Jr.: The role of shared decision making in achieving allocative efficiency in health systems
Section 2: Practical SDM
7: Benjamin W. Moulton and Thaddeus M. Pope: Emerging legal issues for providers in the US
8: Natalie Joseph-Williams, Adrian Edwards, and Glyn Elwyn: Preparing patients ahead of time to share decisions about their health care
9: Rachel Thompson and Lyndal Trevena: Demystifying decision aids: a practical guide for clinicians
10: Glyn Elwyn and Victor M. Montori: Tools to engage patients in clinical encounters
11: Dawn Stacey, France Légaré, and Nathalie Brière: Engaging clinical teams in an interprofessional approach to shared decision making
12: Kyla Donnelly and Pearl Brady: The science and art of partnering with patients in research
Section 3: Teaching SDM
13: Glyn Elwyn: The three talk model of shared decision making
14: Gregory Makoul and Nan Cochran: Models for teaching shared decision making
15: Nan Cochran, Dawn Carey, and Arianna I. Blaine: Standardised patients as educational interventions
16: Suzanne Mitchell and Jeffrey Ring: Avatars and virtual worlds: new technology solutions for teaching and learning shared decision making
17: Alan Nye, Suzanne Brodney, Meg Bowen, and Richard Wexler: Dispelling myths about the implementation of shared decision making
Section 4: Communicating evidence
18: Adrian Edwards and Lyndal Trevena: What you need to know as a clinician about risk communication
19: Michelle McDowell: Making sense of numbers about health risks The Facts Box
20: Ray Moynihan: Overdiagnosis and overtreatment: Beware of guidelines with expanded disease definitions
Section 5: Evidence reviews
21: Michael R. Gionfriddo, M. Hassan Murad, Annie LeBlanc, and Victor M. Montori: GRADE: a framework to evaluate the quality of evidence and facilitate shared decision making
22: Dawn Stacey, France Legare, Karen Eden, Nananda Col, and Annie LeBlanc: The effects of patient decision aids: a systematic review
23: France Légaré, Isabelle Scholl, Dawn Stacey, and Stéphane Turcotte: Implementing shared decision making: a systematic review
24: Angela Coulter and Vikki Entwistle: Personalised care planning: a systematic review
25: Marjan Faber, Sandra van Dulmen, and Paul Kinnersley: Using interventions with patients before clinical encounters to encourage their participation: a systematic review
Section 6: Measurement
26: Paul J. Barr, Isabelle Scholl, and Debra de Silva: Patient-reported measures of shared decision making
27: Glyn Elwyn and Arianna I. Blaine: Observer measures of shared decision making
28: Paul J. Barr and Marie-Anne Durand: Implementing shared decision making: The role of incentives
Section 7: Implementation case studies
29: David Arterburn, Emily O. Westbrook, and Clarissa Hsu: Case Study: The shared decision making story at Group Health
30: Amy Lloyd and Natalie Joseph-Williams: Case Study: Different outcomes from different approaches - Experience from The Cardiff MAGIC Program, UK
31: Alice O. Andrews, Stephen A. Kearing, and Dale C. Vidal: Case Study: Changing culture and delivery to achieve shared decision making at Dartmouth-Hitchcock Medical Center (DHMC), New Hampshire
32: Leigh Simmons, Lauren Leavitt, and Karen Sepucha: Case Study: Letting patients decide - A novel distribution strategy in primary care, Massachusetts General Hospital
33: Ming Tai-Seale: Case Study: Developing and implementing decision support at the Palo Alto Medical Foundation
34: Claudia Zeballos-Palacios, Annie LeBlanc, Erik P. Hess, Jon Tilburt, Kirk Wyatt, Kasey Boehmer, Maggie Breslin, Megan Branda, and Victor M. Montori: Case Study: Interventions to create better conversations at the Mayo Clinic
Section 8: The broader picture
35: Marie-Anne Durand, Robert J. Volk, and Glyn Elwyn: Shared decision making interventions and health inequalities
36: Marion McAllister: Shared decision making, health literacy, and patient empowerment
37: Glyn Elwyn and Dominick L. Frosch: Shared decision making and motivational interviewing: Integrating two basic tools
38: Christina Gunther-Murphy, Andrea Kabcenell, and Gareth Parry: Quality improvement and shared decision making: How can shared decision making fit into quality improvement efforts?
39: Tammy Hoffmann and Paul Glasziou: Bringing shared decision making and evidence-based practice together
40: Thomas Agoritsas and Richard Lehman: Encounter tools: interventions to engage people in decision making
Section 9: Moving forward
41: Gary Schwitzer: How can journalists do a better job reporting on the principles of shared decision making?
42: Kristin L. Carman, Thomas A. Workman, and Marla L. Clayman: What can patients and patient groups do to promote shared decision making?
43: J.W.M. (Annemijn) Aarts, Andrew Carson-Stevens, Barry G. Main, Manish K. Mishra, and Leigh H. Simmons: What can junior physicians do to help promote shared decision making?
44: Alan Nye, Michael Barry, Kevin Bozic, Jan Kremer, Sheila Macphail, and Gautham Suresh: What can experienced physicians do to help promote shared decision making?
45: Jill E. Thistlethwaite: What can medical educators do to help promote shared decision making?
Index
About the Author :
Glyn Elwyn, MD MSc FRCGP PhD is a physician-researcher, Professor and Senior Scientist at The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, USA. After reading the humanities he qualified in medicine in the United Kingdom. He completed a masters in medical education (MSc) and a health services research doctorate (PhD) under the guidance of Professor Richard Grol in the Netherlands.
Professor Elwyn leads interdisciplinary research examining the implementation of shared decision making, user-centred design of patient decision support interventions and the integration of these into routine health care. He also holds the following positions: Honorary Research Chair at Cardiff University and Visiting Chair at the Scientific Institute for Quality of Healthcare, Radboud University Nijmegen Medical Centre, Netherlands. Professor Adrian Edwards is Professor in General Practice and
Director of the Institute for Primary Care & Public Health at Cardiff University, Wales, UK. He is also a part-time general practitioner in Cwmbran, Gwent, South Wales and sees about 60 patients per
week. He also has Visiting appointments at Aarhus and Southern Denmark Universities. Dr Rachel Thompson is an Assistant Professor at The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, USA. She conducts applied health services research that seeks to enhance provider-patient communication; facilitate shared decision-making by patients and providers; support providers to understand and respond to the needs and preferences of patients; and strengthen the patient
voice in the design and evaluation of health services, clinical trials, and health care guidelines and policies. She has broader research interests in implementation science, particularly in research that
seeks to increase understanding of barriers and enablers to the successful adoption of evidence-based innovations, and to successful disinvestment in futile or harmful interventions in health care.
