Source Book in Bioethics: A Documentary History

Government agencies and commissions, courts, and legislatures have during the past several decades produced reports, rendered decisions, and passed laws that have both defined the fundamental issues in the field of bioethics and established ways of managing them in our society. Providing a history of these key bioethical decisions, this Source Book in Bioethics is the first and only comprehensive collection of the critical public documents in biomedical ethics, including many hard-to-find or out-of-print materials. Covering the period from 1947 to 1995, this volume brings together core legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Sections on human experimentation, care of the terminally ill, genetics, human reproduction, and emerging areas in bioethics include such pivotal works as "The Nuremberg Code," "The Tuskegee Report," and "In the Matter of Baby M," as well less readily available documents as "The Declaration of Inuyama," the Council for International Organizations of Medical Sciences statement on genetic engineering, and "The Warnock Committee Report" on reproductive technologies from the United Kingdom. Three eminent scholars in the field provide brief introductions to each document explaining the significance of these classic sources. This historical volume will be a standard text for courses in bioethics, health policy, and death and dying, and a primary reference for anyone interested in this increasingly relevant field.

Table of Contents:
Preface Introduction The Ethics of Research with Human Subjects A Short HistoryAlbert R. JonsenThe Nuremburg Code Declaration of Helsinki: Recommendations Guiding Medical Doctors in Biomedical Research Involving Human Subjects On the Protection of Human Subjects: U.S. Department of Health, Education and Welfare's Institutional Guide The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research: National Commission Research on the Fetus: National Commission Research Involving Children: National Commission Insitutional Review Boards: National Commission Federal Regulations Regarding the Protection of Human Subjects of Research Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel Research on In Vitro Fertilization: Ethics Advisory Board DHEW Human Fetal Tissue Transplantation Research Panel: National Institutes of Health The Ethics of Death and Dying Changing Attitudes Toward Death and MedicineRobert M. Veatch Defining Death: Medical Legal, and Ethical Issues in the Definition of Death: President's Commission In the Matter of Karen Quinlan: The Supreme Court, State of New Jersey The California Natural Death Act: State of California Superintendent of Belchertown State School v. Saikewicz Deciding to Forego Life-Sustaining Treatment: Ethical, Medical, and Legal Issues in Treatment Decisions: President's Commission In the Matter of Claire Conroy: The Supreme Court, State of New Jersey Cruzan v. Director, Missouri Department of Health: U.S. Supreme Court Child Abuse and Neglect Prevention and Treatment: Final Rule in the Matter of Baby K Ethical Issues in Human Genetics Issues in GeneticsLeRoy Walters Genetic Screening: Programs, Principles, and Research Screening and Counseling for Genetic Conditions: President's Commission Assessing Genetic Risks: Implications for Health and Social Policy: Institute of Medicine Recommendation 934: On Genetic Engineering: Council of Europe Splicing Life: The Social and Ethicla Issues of Genetic Engineering with Human Beings: President's Commission NIH "Points to Consider" for Gene Therapy Researchers Gene Therapy for Human Patients: Information for the General Public Gene Therapy in Man: Recommendations of European Medical Research Councils The Declaration of Inuyama: CIOMS Mapping and Sequencing the Human Genome: National Academy of Sciences Mapping Our Genes: The Genome Projects - How Big, How Fast?: Office of Technology Assessment Ethical Issues Arising from Human Reproductive Technologies and ArrangementsReading on Human Reproduction: IntroductionLeRoy Walters HEW Support of Research Involving In Vitro Fertilization - First Interim Report of the Waller Committee, Victoria, Austrailia Report of the Committee of Inquiry into Human Fertilisation and Embryology: The Warnock Committee, United Kingdom Ethical Considerations of the New Reproductive Technologies: American Fertility Society Instruction on Respect for Human Life: The Congregation for the Doctrine of the Faith In the Matter of Baby M, New Jersey Supreme Court Infertility: Medical and Social Choices - U.S. Congress, Office of Technology Assessment Ethics of New Reproductive Technologies: The Glover Report to the European Commission Ethical Issues in Surrogate Motherhood: American College of Obstetricians and Gynecologists Proceed with Care: Final Report of the Royal Commission on New Reproductive Technologies Ethical Issues in the Changing Health Care System The Uniform Anatomical Gift Act Organ Transplantation: Issues and Recommendations Canterbury v. Spence, District of Columbia Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practicioner Relationship: President's Commission Tarasoff v. Regents of University of California, Supreme Court of California Index