Discover practical hope and real-world guidance with The Charcot-Marie-Tooth Disease Guide - the essential resource for anyone living with CMT.
If you or a loved one has recently received a Charcot-Marie-Tooth (CMT) diagnosis, you know how overwhelming it feels. This hereditary neuropathy affects the peripheral nerves, leading to foot drop, high arches, hammertoes, hand weakness, fatigue, balance issues, and progressive muscle changes. Medical websites are often too clinical and confusing. This book changes that.
Written in clear, compassionate, and easy-to-understand language, The Charcot-Marie-Tooth Disease Guide by Michael E. Jones delivers simple, actionable information on CMT symptoms, genetics, diagnosis, daily management, mobility support, and living well. Whether you're newly diagnosed, a parent of a child with CMT, a long-time warrior, or a caregiver, this guide serves as your trusted companion.
Inside you'll find:
- Simple explanations of CMT types (CMT1, CMT2, CMT1A, CMTX, etc.), how it affects nerves vs. muscles, and why symptoms vary so much between family members
- Practical chapters on foot care, braces & AFOs, hand function, pain & fatigue management, exercise, stretching, and fall prevention
- Guidance on building your care team (neurologists, PT, OT, orthotists, podiatrists), genetic testing, surgery decisions, and medication safety
- Real strategies for school, work, relationships, pregnancy, parenting, home modifications, and emotional wellbeing
- Handy toolkits: symptom trackers, appointment checklists, questions for doctors, home safety lists, and a personal CMT action plan
This is not a dense medical textbook or false-hope cure promise. It's a practical, empathetic handbook focused on what actually helps: preserving independence, managing symptoms, reducing complications, and building a full life beyond the diagnosis.
Perfect for patients, families, and caregivers seeking reliable CMT resources and support. Empower yourself with knowledge that makes a real difference in daily living with Charcot-Marie-Tooth disease.
Take the first step toward better understanding and management - one chapter, one day at a time.
