Dementia: The NICE-SCIE guideline on supporting people with dementia and their carers in health and social care(NICE Guidelines)

The guideline on dementia is the first of its kind to fully integrate the health and social aspects of care for people with dementia into a single volume. It has been jointly developed by NICE (the National Institute for Health and Clinical Excellence) and SCIE (the Social Care Institute for Excellence). There are an estimated 700,000 people with dementia in the UK and approximately 1 million people caring for them. The guideline sets out clear recommendations, based on the best available evidence, for health and social care staff on how to work with people with dementia and their carers to significantly improve their treatment and care. This publication brings together all of the evidence that led to the recommendations in the guideline. It provides an overview of the condition and covers detection, diagnosis and assessment, and the full range of treatment and care approaches for people with dementia including promoting independence, psychological and psychosocial interventions, pharmacological treatments and palliative care. Importantly, it also addresses support and interventions for carers of people with dementia.

Table of Contents:
Full Contents Guideline Development Group membership 1. EXECUTIVE SUMMARY 1.1 Principles of care for people with dementia 1.2 Integrated health and social care 1.3 Risk factors, prevention and early identification 1.4 Diagnosis and assessment of dementia 1.5 Promoting and maintaining independence of people with dementia 1.6 Interventions for cognitive symptoms and maintenance of function for people with dementia 1.7 Interventions for non-cognitive symptoms and behaviour that challenges in people with dementia 1.8 Interventions for comorbid emotional disorders in people with dementia 1.9 Inpatient dementia services 1.10 Palliative care, pain relief and care at the end of life for people with dementia 1.11 Support and interventions for the carers of people with dementia 1.12 Research recommendations 2. INTRODUCTION 2.1 National guidelines 2.2 The national dementia guideline 3. METHODS USED TO DEVELOP THIS GUIDELINE 3.1 Overview 3.2 The scope 3.3 The Guideline Development Group 3.4 Key questions 3.5 Systematic literature review 3.6 Qualitative evidence review 3.7 Health economics review 3.8 Stakeholder contributions 3.9 Validation of this guideline 4. DEMENTIA 4.1 Introduction 4.2 Social model of dementia 4.3 Examples of experiences of care 4.4 Incidence and prevalence 4.5 Aetiology 4.6 Detection and assessment 4.7 Risk, abuse and neglect 4.8 Disclosure/stigma 4.9 Basic legal and ethical concepts in connection with dementia care 4.10 Treatment and care of people with dementia in England and Wales 4.11 Palliative care, pain relief and care at the end of life for people with dementia 4.12 The economic cost of dementia 4.13 Health and social care recommendations 5. HEALTH AND SOCIAL CARE SERVICES FOR PEOPLE WITH DEMENTIA AND THEIR CARERS 5.1 Introduction 5.2 The organisation and planning of services 5.3 Design of living and care environments 5.4 Health and social care recommendations 6. PREVENTION, EARLY IDENTIFICATION, ASSESSMENT AND DIAGNOSIS OF DEMENTIA 6.1 Introduction 6.2 Prevention 6.3 Early identification 6.4 Diagnosis and assessment 6.5 Experience of assessment process 6.6 Health and social care recommendations 7. THERAPEUTIC INTERVENTIONS FOR PEOPLE WITH DEMENTIA - COGNITIVE SYMPTOMS AND MAINTENANCE OF FUNCTIONING 7.1 Introduction 7.2 Strategies for promoting independence 7.3 Maintenance of cognitive function: psychological interventions 7.4 Acetylcholinesterase inhibitors or memantine for the treatment of cognitive symptoms of non-Alzheimer dementia 7.5 Medicines other than acetylcholinesterase inhibitors/ memantine for the treatment of cognitive symptoms of dementia 7.6 Medicines that control risk factors for vascular dementia for the treatment of cognitive symptoms of dementia 7.7 Qualitative evidence on the experiences of people with dementia and their carers of medication for the treatment of dementia 7.8 Research recommendations 7.9 Health and social care recommendations 8. THERAPEUTIC INTERVENTIONS FOR PEOPLE WITH DEMENTIA - NON-COGNITIVE SYMPTOMS AND BEHAVIOUR THAT CHALLENGES 8.1 Introduction 8.2 Non-pharmacological interventions for behaviour that challenges 8.3 Psychological interventions for people with dementia with depression or anxiety 8.4 Pharmacological interventions for non-cognitive symptoms of dementia and comorbid emotional disorders 8.5 Research recommendations 8.6 Health and social care recommendations 9. EDUCATION FOR PEOPLE WITH DEMENTIA, DEMENTIA CARE MAPPING, STAFF TRAINING AND INTERVENTIONS FOR CARERS OF PEOPLE WITH DEMENTIA 9.1 Introduction 9.2 Educational interventions for people with dementia 9.3 Dementia care mapping 9.4 Models of training 9.5 Interventions for carers of people with dementia 9.6 Research recommendations 9.7 Clinical and social care recommendations 10. Appendices 11. References 12. Glossary 13. Abbreviations

About the Author :
The National Collaborating Centre for Mental Health (NCCMH) was established in 2001 by the UK-based National Institute for Health and Clinical Excellence (NICE) to develop guidance on the appropriate treatment and care of people with mental health problems and then write the clinical guidelines. The NCCMH is a partnership between the Royal College of Psychiatrists and the British Psychological Society.