Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. The Still Point of the Turning World is the story of a mother' s journey through grief and beyond it. Rapp' s response to her son' s diagnosis was a belief that she needed to " make my world big"-- to make sense of her family' s situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley' s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.
About the Author :
Emily Rapp is the author of Poster Child: A Memoir. She is the recipient of a Rona Jaffe Writers' Award, a James A. Michener Fellowship at the University of Texas-Austin, and the Philip Roth Writer-in-Residence fellowship at Bucknell University. Rapp is a former Fulbright scholar and graduate of Harvard Divinity School, and her writing has appeared in Slate, Salon, and the New York Times. She is currently professor of creative writing and literature at the Santa Fe University of Art.
Ali Ahn is a film, television, and voice actor. Her acting credits include appearances on Law & Order, Ugly Betty, White Collar, and Zero Hour. She has also narrated numerous audio books, such as Honolulu by Alan Brennert, This Lullaby by Sarah Dessen, Persian Pickle Club by Sandra Dallas, and Super Sad True Love Story by Gary Shteyngart.
Review :
"A brilliant study of the wages of mortal love."
-- "New York Times Book Review"
"A passionate, potent chronicle...A beautiful, searing exploration of the landscape of grief and a profound meditation on the meaning of life."
-- "Kirkus Reviews"
"An unforgettable moral and artistic triumph."
-- "Dani Shapiro, author of Devotion and Slow Motion"
"Emily Rapp didn't want to tell us this story. She had to. That necessity is evident in every word of this intelligent, ferocious, grace-filled, gritty, astonishing starlight of a book."
-- "Cheryl Strayed, New York Times bestselling author"
"Impassioned and searing...Rapp combines an essayist's willingness to lay herself bare on the page, a theologian's search to plumb the mysteries of life, and a poet's precision. The result is stunning...It's a circular account, raw and cerebral, raising more questions than it presumes to answer."
-- "San Francisco Chronicle"
"Radiant...Emily Rapp is not one to sugarcoat hard truths...Writing is clearly an essential tool for dealing with 'thoughts that put me right at the thinning edge of sanity.' But her memoir is also an indication that this self-proclaimed reformed 'ambition addic' hasn't eschewed all aspirations: Redescribing [his] story, Ronan's story--his path, his myth--could blaze new pathways of understanding not only for me but for others."
-- "Los Angeles Times"
"Rapp elegantly transforms her experience of mothering a child who will die into a tenuous understanding of mortality and loving "without a net, without the future, without the past...right now."
-- "NPR"
"Rapp's words will sear your heart and make you want to be a better parent, sister, partner, friend. Reading her book will change your life."
-- "Sarah Sentilles, author of Breaking Up with God"
"This is a book that's honest and thoughtful, and we find that, like Rapp herself, enduring such heartbreak imbues us with a new sense of wisdom and courage."
-- "Amazon.com, editorial review"
"Unflinching and unsentimental, Rapp's work lends a useful, compassionate, healing message for suffering parents and caregivers."
-- "Publishers Weekly"
"Written with remarkable precision and restraint, Emily Rapp's The Still Point of the Turning World takes us to the depths of grief, where almost against our will, heartbreak becomes beautiful."
-- "Roger Rosenblatt, New York Times bestselling author"
