About the Book
Pediatric Collections offers what you need to know – original, focused research in a snapshot approach.The ethical issues that arise in pediatrics vary drastically from those in other clinical settings because young children cannot make decisions for themselves. This essential collection presents a series of cases that highlight ethical dilemmas that arise in pediatrics including End-of-Life Decisions; When Doctors and Parents Have Different Philosophies; Ethical Issues in Genomics; Ethical Issues Surrounding Permanent Severe Disability in Childhood; Research Ethics; and Issues in Law and Health Policy. This collection is intended to be a starting point for a discussion on pediatric bioethics and a reference when reflecting on similar cases.
Table of Contents:
Introduction Lantos JD
End-of-Life Decisions
A Premature Infant With Necrotizing Enterocolitis Whose Parents Are Jehovah's Witnesses Meadow W, Feudtner C, Antommaria AH, Sommer D, Lantos JD
A Saudi Family Making End-of-Life Decisions in the PICU Sayeed S, Padela A, Naim MY, Lantos JD
Symbolic Resuscitation, Medical Futility, and Parental Rights Frader J, Kodish E, Lantos JD
Palliative Sedation With Propofol for an Adolescent With a DNR Order Johnson LM, Frader J, Wolfe J, Baker JN, Anghelescu DL, Lantos JD
Parental Refusal of a Liver Transplant for a Child With Biliary Atresia Cronin DC, Squires J, Squires R, Mazariegos G, Lantos JD
When Life-Sustaining Treatment Is Withdrawn and the Patient Doesn't Die Kutzsche S, Partridge JC, Leuthner SR, Lantos JD
Is Treatment Futile for an Extremely Premature Infant With Giant Omphalocele? Feltman D, Stokes T, Kett J, Lantos JD
Cross-Cultural Differences in Communication About a Dying Child Cochran D, Saleem S, Khowaja-Punjwani S, Lantos JD
Are We Allowed to Discontinue Medical Treatment in This Child? Leeuwenburgh-Pronk WG, Miller-Smith L, Forman V, Lantos JD, Tibboel D, Buysse C
Two Infants, Same Prognosis, Different Parental Preferences Antommaria AHM, Collura CA, Antiel RM, Lantos JD
Different Philosophies<
Introduction
When Doctors and Parents Have Different Philosophies Lantos JD
A 6-Month-Old With Vaccine-Hesitant Parents Opel DJ, Feemster KA, Omer SB, Orenstein WA, Richter M, Lantos JD
Should Pediatric Practices Have Policies to Not Care for Children With Vaccine-Hesitant Parents? Alexander K, Lacy TA, Myers AL, Lantos JD
When Parents Refuse a Septic Workup for a Newborn Simpson E, Moon M, Lantos JD
Should All Deaf Children Learn Sign Language? Napoli DJ, Mellon NK, Niparko JK, Rathmann C, Mathur G, Humphries T, Handley T, Scambler S, Lantos JD
Should Neonatologists Give Opinions Withdrawing Life-sustaining Treatment? Blumenthal-Barby JS, Loftis L, Cummings CL, Meadow W, Lemmon M, Ubel PA, McCullough L, Rao E, Lantos JD
Genomics
Introduction
Ethical Issues in Genomics Lantos JD
Genomic Contraindications for Heart Transplantation Char DS, Lázaro-Muñoz G, Barnes A, Magnus D, Deem MJ, Lantos JD
Please Test My Child for a Cancer Gene, but Don't Tell Her Bester J, Sabatello M, van Karnebeek CDM, Lantos JD
Testing Children for Adult-Onset Genetic Diseases Caga-anan ECF, Smith L, Sharp RR, Lantos JD
Severe Disability
Introduction
Ethical Issues Surrounding Permanent Severe Disability in Childhood Lantos JD
Mechanical Ventilation for a Child With Quadriplegia Novotny WE, Perkin RM, Mukherjee D, Lantos JD
An Infant With Trisomy 18 and a Ventricular Septal Defect Janvier A, Okah F, Farlow B, Lantos JD
A Baby With Meningococcemia and Septic Shock Leeuwenburgh-Pronk WG, Smith PJ, van Vught AJ, Lantos JD, Tibboel D, de Hoog M, Buysse C
Research Ethics
Introduction
Research Ethics Lantos JD
Should an IRB Approve a Placebo-Controlled Randomized Trial of Analgesia for Procedural Pain in Neonates? Bellieni CV, Taddio A, Linebarger JS, Lantos JD
When Is Waiver of Consent Appropriate in a Neonatal Clinical Trial? Schreiner MS, Feltman D, Wiswell T, Wootton S, Arnold C, Tyson J, Lantos JD
Risks in a Trial of an Innovative Treatment of Duchenne Muscular Dystrophy Bos W, Estra AE, Pinxten W, Mayer MP, Lantos JD
Randomized n-of-1 Trials: Quality Improvement, Research, or Both? Samuel JP, Burgart A, Wootton SH, Magnus D, Lantos JD, Tyson JE
Law and Health Policy
Introduction
Issues in Law and Health Policy Lantos JD
Can a Patient Designate His Doctor as His Proxy Decision Maker? Black PG, Derse AR, Derrington S, Lantos JD
Who Should Get the Last PICU Bed? Wightman A, Largent E, Del Beccaro M, Lantos JD
Was Sarah Murnaghan Treated Justly? deSante J, Caplan A, Hippen B, Testa G, Lantos JD
Should We Tell Parents When We've Made an Error? Bell SK, Mann KJ, Truog R, Lantos JD
When a Surgical Colleague Makes an Error Antiel RM, Blinman TA, Rentea RM, Gonzalez KW, Knott EM, Juang D, Oyetunji T, Holcomb GW III, Angelos P, Lantos JD
The Dilemma of Predicting Violent Radicalization Rousseau C, Ellis BH, Lantos JD
About the Author :
The American Academy of Pediatrics is an organization of 67,000 primary care pediatricians, pediatric medical subspecialists and pediatric surgical specialists dedicated to the health, safety and well-being of infants, children, adolescents and young adults. The AAP is the largest pediatric publisher in the world, with a diverse list of resources that includes essential clinical and practice management titles and award-winning books for parents.
Dr John D. Lantos is Director of the Bioethics Center at Children's Mercy Hospital and Professor of Pediatrics at the University of Missouri-Kansas City School of Medicine. He was recently honored with the prestigious William G. Bartholome Award for Ethical Excellence at the 2018 National Conference of the American Academy of Pediatrics (AAP). The award recognizes an individual who has significantly advanced public discussion of ethical issues in pediatric medicine. Lantos earned his MD from the University of Pittsburgh School of Medicine and did his residency at the Children's National Medical Center in Washington, DC. Lantos' research areas include bioethics, doctor-patient communication, research ethics, end-of-life care, and religious and philosophical issues in relation to healthcare.
Review :
"This is an excellent, clinically relevant series of cases involving medical ethics in pediatrics compiled and edited by the premier pediatric medical ethicist John Lantos. Clinicians, physicians, and pediatric providers in training will learn basic principles of bioethics in a medical context using a case-based or casuistic approach. The introduction presents the basics of bioethics and subsequent sections present cases involving end-of-life decisions, different philosophies, genomics, severe disability, research ethics, and law and health policy. Each case is a clinical story, and anyone involved with the clinical care of pediatric patients will be able to identify with and embrace. As a pediatrician with over 30 years of clinical experience as a neonatologist, pediatric intensivist, hospitalist, and apnea doctor, I learned a lot and relived a number of clinical situations in reading this excellent book. It should be available in every pediatric medical library as well as in units caring for critically ill pediatric patients." — Joseph Hageman, MD, University of Chicago Pritzker School of Medicine
