Buy Data Privacy, Data Property, and Data Sharing by Mariavittoria Catanzariti
Book 1
Book 2
Book 3
Book 1
Book 2
Book 3
Book 1
Book 2
Book 3
Book 1
Book 2
Book 3
Home > Medicine & Health Science textbooks > Medicine: general issues > Medical profession > Medical ethics and professional conduct > Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research
Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research

Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research


     0     
5
4
3
2
1



Out of Stock


Notify me when this book is in stock
X
About the Book

The recent adoption of the EU Regulation on the European Health Data Space is a significant development in European data law. While the need to protect the confidentiality of information and control over personal data — and, more generally, fundamental rights, particularly those of vulnerable people — is undeniable, the importance of using data for public interest, such as in healthcare and scientific research, has been brought to the fore by the Covid-19 pandemic. This book addresses the controversial issues surrounding data sharing, including data protection, ownership and reuse, and the related ethical considerations. With contributions from experts in various fields, including medicine and law, it encourages interdisciplinary dialogue on the use of health data in Europe and beyond.

Table of Contents:
Preface. Acknowledgements and Funding. SCIENTIFIC RESEARCH AT THE CROSSROADS OF THE LAW AND ETHICS OF HEALTH DATA. Emerging Issues in Transnational Biomedical Research: The Value of Patient Cohorts and Databases. Opportunities for Research with Data. What Does Health Data Stand for Scientists and Lawyers? An Overview of GDPR Obligations and Biomedical Research. Patients’, and Other Experts’, Perspectives. The Human-Centric Approach in Scientific Research: The AI Act and the New Frontiers of Research Ethics. WHO “OWNS” DATA? The Data Economy, Health Data and the Lexicon of Property: Comparative Remarks. Ownership or Control? Data Ownership and Data Markets: The Chinese Experience. Parts and Wholes: Developing Innovative Governance Mechanisms for Data Flows Beyond the Paradigms of Privacy and Property. Data Ownership: Empowering Students in the Digital Age. Regulating Health Data: A Comparative Perspective. SUSTAINABLE HEALTH DATA SHARING. Data-Related Ethics Issues in EU-Funded Research Projects. Models of Data Sharing and Best Practices. Privacy-Preserving AI-Based Solutions. E-health and Older Persons (Between Age Discrimination and Data Protection Issues). The Role of the Cohort Coordination Board in Supporting Data Sharing and Data Harmonization Efforts in Europe as Part of Pandemic Preparedness. EUROPEAN HEALTH DATA SPACE AND BEYOND. Health Data in Europe—At the Crossroads of Data Protection and Data Sharing. Health Data Sharing for Scientific Research: Closing Data “As Necessary” and Opening it “As Possible”. Resisting Transparency: The Paradox of the EU Vaccines Strategy. Realizing International Data Transfers for Health Research through Risk-based Regulation and Secure Infrastructure. Index.

About the Author :
Mariavittoria Catanzariti is Assistant Professor in Legal Philosophy at University of Padua. Previously she covered different positions at European University Institute, as Jean Monnet Fellow, Research Associate and Research Fellow. Barrister in law since 2010, she obtained a PhD in Law from Roma Tre University in 2011; the Italian Scientific Qualification as Associate Professor in Legal Philosophy and Associate Professor and Full Professor in Legal Sociology. Her research interests focus on human rights and IT law. Francesca Incardona holds a master's degree in Physics. She has worked in European research activities on technological and biomedical aspects, including HIV and COVID-19 research. Since 2008, she has been co-founder and CEO of the EuResist Network, a European Grouping for interdisciplinary HIV research, co-founded by Karolinska and Max Planck Institutes, and Universities of Cologne and Siena. She currently coordinates the EuCARE Horizon Europe project and has authored a book and co-authored multiple peer-reviewed publications. Giorgio Resta (JD, University of Pisa) is a full professor of comparative law and vice-rector for international affairs at Roma Tre University (Italy). He is a member of the board of the Italian Association of Comparative Law and an associate member of the International Academy of Comparative Law. He is also an honorary member of the Italian Private Law Scholars’ Association and has written extensively on law and new technologies, data protection, and data ownership. Anders Sönnerborg MD, PhD, is professor in infectious diseases and virology at Department of Medicine Huddinge, Karolinska Institute, and is also a senior consultant at Karolinska University Hospital. He has worked in HIV clinical care since 1983 and has done extensive international research in activities related to technological and biomedical aspects, including HIV and COVID-19. In 2008, he co-founded the EuResist Network. He is currently a work-package leader of the EuCARE Horizon Europe project. He has more than 500 publications in peer-reviewed journals.


Best Sellers


Product Details
  • ISBN-13: 9781040512081
  • Publisher: Taylor & Francis Ltd
  • Binding: Digital (delivered electronically)
  • Sub Title: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research
  • ISBN-10: 1040512089
  • Publisher Date: 16 Dec 2025
  • Language: English


Similar Products

Add Photo
Add Photo

Customer Reviews

REVIEWS      0     
Click Here To Be The First to Review this Product
Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research
Taylor & Francis Ltd -
Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research
Writing guidlines
We want to publish your review, so please:
  • keep your review on the product. Review's that defame author's character will be rejected.
  • Keep your review focused on the product.
  • Avoid writing about customer service. contact us instead if you have issue requiring immediate attention.
  • Refrain from mentioning competitors or the specific price you paid for the product.
  • Do not include any personally identifiable information, such as full names.

Data Privacy, Data Property, and Data Sharing: An Interdisciplinary Perspective for Post-pandemic Transnational Scientific Research

Required fields are marked with *

Review Title*
Review
    Add Photo Add up to 6 photos
    Would you recommend this product to a friend?
    Tag this Book Read more
    Does your review contain spoilers?
    What type of reader best describes you?
    I agree to the terms & conditions
    You may receive emails regarding this submission. Any emails will include the ability to opt-out of future communications.

    CUSTOMER RATINGS AND REVIEWS AND QUESTIONS AND ANSWERS TERMS OF USE

    These Terms of Use govern your conduct associated with the Customer Ratings and Reviews and/or Questions and Answers service offered by Bookswagon (the "CRR Service").


    By submitting any content to Bookswagon, you guarantee that:
    • You are the sole author and owner of the intellectual property rights in the content;
    • All "moral rights" that you may have in such content have been voluntarily waived by you;
    • All content that you post is accurate;
    • You are at least 13 years old;
    • Use of the content you supply does not violate these Terms of Use and will not cause injury to any person or entity.
    You further agree that you may not submit any content:
    • That is known by you to be false, inaccurate or misleading;
    • That infringes any third party's copyright, patent, trademark, trade secret or other proprietary rights or rights of publicity or privacy;
    • That violates any law, statute, ordinance or regulation (including, but not limited to, those governing, consumer protection, unfair competition, anti-discrimination or false advertising);
    • That is, or may reasonably be considered to be, defamatory, libelous, hateful, racially or religiously biased or offensive, unlawfully threatening or unlawfully harassing to any individual, partnership or corporation;
    • For which you were compensated or granted any consideration by any unapproved third party;
    • That includes any information that references other websites, addresses, email addresses, contact information or phone numbers;
    • That contains any computer viruses, worms or other potentially damaging computer programs or files.
    You agree to indemnify and hold Bookswagon (and its officers, directors, agents, subsidiaries, joint ventures, employees and third-party service providers, including but not limited to Bazaarvoice, Inc.), harmless from all claims, demands, and damages (actual and consequential) of every kind and nature, known and unknown including reasonable attorneys' fees, arising out of a breach of your representations and warranties set forth above, or your violation of any law or the rights of a third party.


    For any content that you submit, you grant Bookswagon a perpetual, irrevocable, royalty-free, transferable right and license to use, copy, modify, delete in its entirety, adapt, publish, translate, create derivative works from and/or sell, transfer, and/or distribute such content and/or incorporate such content into any form, medium or technology throughout the world without compensation to you. Additionally,  Bookswagon may transfer or share any personal information that you submit with its third-party service providers, including but not limited to Bazaarvoice, Inc. in accordance with  Privacy Policy


    All content that you submit may be used at Bookswagon's sole discretion. Bookswagon reserves the right to change, condense, withhold publication, remove or delete any content on Bookswagon's website that Bookswagon deems, in its sole discretion, to violate the content guidelines or any other provision of these Terms of Use.  Bookswagon does not guarantee that you will have any recourse through Bookswagon to edit or delete any content you have submitted. Ratings and written comments are generally posted within two to four business days. However, Bookswagon reserves the right to remove or to refuse to post any submission to the extent authorized by law. You acknowledge that you, not Bookswagon, are responsible for the contents of your submission. None of the content that you submit shall be subject to any obligation of confidence on the part of Bookswagon, its agents, subsidiaries, affiliates, partners or third party service providers (including but not limited to Bazaarvoice, Inc.)and their respective directors, officers and employees.

    Accept

    Fresh on the Shelf


    Inspired by your browsing history


    Your review has been submitted!

    You've already reviewed this product!