The Stored Tissue Issue by Robert F Weir at Bookstore UAE
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Home > Medicine & Health Science textbooks > Medicine: general issues > Medical profession > Medical ethics and professional conduct > The Stored Tissue Issue: Biomedical research, ethics and law in the era of genomic medicine
The Stored Tissue Issue: Biomedical research, ethics and law in the era of genomic medicine

The Stored Tissue Issue: Biomedical research, ethics and law in the era of genomic medicine


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About the Book

Genetics research with stored human tissues provides many benefits and holds much promise. Yet how this critical research is conducted sometimes raises serious ethical, legal, and social concerns, and it is difficult to balance the promise of biomedical research with our time-honored commitments to individual choice in such fundamental matters as control over personal health information and the disposition of our bodily tissues. Weir and Olick provide a thorough analysis of this critical phase in the era of genomic medicine. While strongly supportive of the biomedical research enterprise, they develop a critique of many common research practices with banked tissues, DNA, and genetic data. Noting numerous examples of beneficial human tissue research, they focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. The authors offer a series of recommendations intended to limit the risks of inadequate informed consent to research for individuals, families, and groups, and to strengthen the bonds of trust between the research enterprise and the public upon which biomedical progress depends. This book offers a wealth of information plus well-reasoned recommendations that will be of keen interest to geneticists, other biomedical scientists, research institutions, policymakers, students and others. It will serve as a clarion call to move beyond traditional policies and practices toward a richer understanding of partnership between patients and research participants and the biomedical research enterprise - a partnership for the benefit of all.

Table of Contents:
Part I: From Unquestioned Traditional Practices to a Controversy about Research, Rights, and Rewards 1: Unprecedented Cases, Changes, and Challenges 2: Concerns About Some Common Research Practices 3: The Controversy over Stored Tissues, Research Practices, and Informed Consent 4: Molecular Genetics: Tissue Samples in the Laboratory Part II: Current Laws, Policies, and Recommendations 5: Recommendations and Policies in Other Countries 6: The Federal Regulations for Human Tissue Research: Summary and Assessment 7: The Larger Legal Framework for Human Tissue Research: Moore and Beyond 8: The National Bioethics Commission Report: Recommendations and Limitations Part III: Ethical, Professional, and Legal Implications 9: Updating Informed Consent in the Era of Genomic Medicine 10: Beyond Informed Consent: Other Ethical Issues and Concerns 11: An Agenda for the Near Future

Review :
"The strength of this book is its thoroughness.... those seeking a comprehensive overview of ethical and legal issues in stored tissue research will find much to explore." --IRB: Ethics and Human Research "...all who hold a stake in this area should give careful attention to the author's assessment of the problematic ethical issues and their call for greater collaboration among researchers, institutions, and persons who participate in tissue research." --The New England Journal of Medicine "5 Stars. Perfect Score!." --Doody's "The authors have made a huge contribution to the field of medical humanities in The Stored Tissue Issue. Pulling from real world examples, they delve into the many different types of research currently being performed."--Medical Humanities Review "The strength of this book is its thoroughness.... those seeking a comprehensive overview of ethical and legal issues in stored tissue research will find much to explore." --IRB: Ethics and Human Research "...all who hold a stake in this area should give careful attention to the author's assessment of the problematic ethical issues and their call for greater collaboration among researchers, institutions, and persons who participate in tissue research." --The New England Journal of Medicine "5 Stars. Perfect Score!" --Doody's "The authors have made a huge contribution to the field of medical humanities in The Stored Tissue Issue. Pulling from real world examples, they delve into the many different types of research currently being performed."--Medical Humanities Review


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Product Details
  • ISBN-13: 9780195123685
  • Publisher: Oxford University Press Inc
  • Publisher Imprint: Oxford University Press Inc
  • Height: 241 mm
  • No of Pages: 366
  • Spine Width: 22 mm
  • Weight: 649 gr
  • ISBN-10: 0195123689
  • Publisher Date: 10 Jun 2004
  • Binding: Hardback
  • Language: English
  • Returnable: N
  • Sub Title: Biomedical research, ethics and law in the era of genomic medicine
  • Width: 164 mm


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The Stored Tissue Issue: Biomedical research, ethics and law in the era of genomic medicine
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